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Remembering Brooke Eby, the TikTok star who documented her ALS journey

NPR | By Kai McNamee,

Mallory Yu

Published October 2, 2026 at 4:23 PM EDT

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After Brooke Eby was diagnosed with ALS, she started to document her experience. The influencer was perhaps best known for her humor. Now, four years after her official diagnosis, Eby has died.